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Antiepileptic drug treatment of rolandic epilepsy and Panayiotopoulos syndrome: clinical practice survey and clinical trial feasibility
(2015-01)
BACKGROUND: The evidence base for management of childhood epilepsy is poor, especially for the most common specific syndromes such as rolandic epilepsy (RE) and Panayiotopoulos syndrome (PS). Considerable international ...
Guidelines, training, audit, and quality standards in children's epilepsy services: Closing the loop.
(2014-11)
There has been considerable evolution in epilepsy healthcare for children over the last decade in the United Kingdom. There has been no single explanation for this. The development of national clinical guidelines, locally ...
Developing clinical practice guidelines for epilepsy: A report from the ILAE Epilepsy Guidelines Working Group
(2015-12)
Clinical practice guidelines (CPGs) contain evidence-based recommendations to guide clinical care, policy development, and quality of care improvement. A recent systematic review of epilepsy guidelines identified considerable ...
Integrated care for childhood epilepsy: ongoing challenges and lessons for other long-term condition
(2016-11)
Epilepsy care has been identified as a major global issue-and there are many recognised concerns in the UK for children and young people with the condition. A proposed new model could help to increase multisector integration, ...
Guidelines and Quality Standards in the Care of Children with Epilepsy.
(2016-05)
To provide quality care for children with epilepsy there is a continuing need to synthesize clinical research into forms that reflect best clinical practice. The design of evidence-based guidelines allows the gathering of ...
Evaluation of a questionnaire to measure parent/carer and child/young person experience of NHS epilepsy services.
(2018-12)
Purpose: To validate a patient-reported-experience-measure, PREM, of the NHS paediatric epilepsy service.Methods: Section 1 of the PREM recorded demographic and clinical characteristics, and Section 2 collected information ...
The current state of epilepsy guidelines: A systematic review
(2016-01)
Objective: The International League Against Epilepsy (ILAE) Epilepsy Guidelines Task Force, composed of 14 international members, was established in 2011 to identify, using systematic review methodology, international ...
Core Health Outcomes In Childhood Epilepsy (CHOICE): protocol for the selection of a core outcome set.
(2017-11-28)
Background: There is increasing recognition that establishing a core set of outcomes to be evaluated and reported in trials of interventions for particular conditions will improve the usefulness of health research. There ...
Core Health Outcomes in Childhood Epilepsy (CHOICE): Development of a core outcome set using systematic review methods and a Delphi survey consensus.
(2019-05)
Objective: Establishing a core set of outcomes to be evaluated and reported in intervention trials aims to improve the usefulness of health research. There is no established core outcome set (COS) for childhood epilepsies. ...
Association of quality of paediatric epilepsy care with mortality and unplanned hospital admissions among children and young people with epilepsy in England: a national longitudinal data linkage study.
(2019-09)
Background: Concerns have been raised about variation in care quality and outcomes among children and young people with epilepsies in England. We aimed to investigate the association between quality of paediatric care, ...